Celine Dion is perhaps one of the most recognizable names in music globally. Her voice is incredibly distinctive, and her unique singing style has earned her fans worldwide.
Right when she was set to embark on a world tour in 2023, the singer announced some devastating news about her health. She revealed her diagnosis and has not been seen in public ever since. Now her sister has an update for us, keep reading to learn more…
Celine Dion canceled her world tour for 2023 after announcing her diagnosis of Stiff Person Syndrome. The syndrome is an autoimmune neurological disorder that leads to muscle rigidity and excruciating spasms.
After revealing that she was suffering from this rare disease, the award-winning singer receded from the limelight. But her family kept fans in the loop and her sister Claudette has been giving regular updates on Celine Dion’s health. In an interview, Claudette said, “We are keeping our fingers crossed in the quest to find a remedy for Celine’s distressing ailment. The spasms are uncontrollable.”
Since the disease is so rare, Claudette went on to explain what it feels like. She explained, “You know how people often abruptly wake up due to a leg or calf cramp? It’s somewhat akin to that, but it affects all her muscles. There’s little we can do to ease her suffering.”
“She’s putting in every effort to regain her health. She’s a resilient woman,” she added, appreciating her sister.
According to reports, Celine’s sister Linda has moved in with her to help care for her. Her sons René-Charles, Eddy, and Nelson are also with their mother through this difficult time in her life.
Claudette gave an interview to Le Journal de Montreal to give fans an insight into how Celine’s life is at the moment. “When I call her and she’s busy, I speak to my sister Linda, who lives with her and tells me that she’s working hard,” Claudette revealed.
“She’s listening to the top researchers in the field of this rare disease as much as possible,” Claudette shared.
As for what Celine’s life looks like currently, she said, “When I call her and she’s busy, I speak to my sister Linda, who lives with her and tells me that she’s working hard.
“She’s listening to the top researchers in the field of this rare disease as much as possible,” she went on.
Dion had planned to embark on her much-awaited tour in Spring 2023 but canceled it in December last year after announcing her illness to the world. She posted a video to her Instagram account in which she expressed herself directly to her fans. She said, “It’s been exceedingly challenging for me to confront these trials and openly discuss the issues I’ve been grappling with… While we’re still unraveling the mysteries of this rare condition, we now understand it as the root cause behind all the spasms I’ve been enduring.”
Stiff Person Syndrome is incredibly rare. It only affects one person in a million. The syndrome causes muscles to tense up uncontrollably and then leaves a person looking like a ‘human statue’ as even walking and talking become a struggle.
While there is no cure for the syndrome, there are treatments that can slow down its progression. And the singer said she is doing everything she can to reduce her symptoms.
But while she is managing her symptoms, she is still said to be in a lot of pain. In June this year, a source revealed that “Celine is in an enormous amount of pain,” adding that, “She has the best medical team money can buy, but things aren’t looking good.
The source lamented, “Her disease is incurable. And as hard she’s worked at it with doctors and therapists, she simply isn’t getting better.”
“To be honest, she can barely move,” they shared.
According to the news, the singer has sold her house in order to be closer to her family during this trying time as well.
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